Showing posts with label peanut nut allergy. Show all posts
Showing posts with label peanut nut allergy. Show all posts

Friday, May 27, 2011

Hello May. You snuck up on me.

See this kid. He has been the light in our darkness. He is the reason to get out of bed in the morning. And the reason we rush home from work so we can spend every possible minute of daylight together.

He has really blossomed into a charming young boy the past few months. His sense of humor is sprouting. He is an absolute joy to be around (most of the time.)

He loves playing outside. I usually have to drag him in kicking and screaming when its time for dinner or bed. Just like his Papa, he wants to play and get dirty out in the yard.

He's definitely on his own agenda. He insists on choosing which shoes he wears each day. Sometimes he digs out my winter boots and asks if he can wear them or if I'd like to.

Of course he doesn't ask in words. It's more of a grunt and look of question on his face.

We've been working diligently on getting him to speak more. When we eliminated the pacifier from his daily activities, only allowing it at naps and bedtime, he started to express himself more verbally.

If I ask him to use his words, he'll point to his mouth because that is what I did while trying teach him to speak. To him, pointing to his mouth is sign language for "words". Oops!

He's sneaky about when he chooses to talk. When we ask him to repeat after us he just looks blankly at us or ignores us all together. But when we pay close attention he'll blurt out appropriate words. Like the other day when I picked him up from Becky's house, he said "Bye Drew." It was so random. I said to Becky "Did he just say what I think he said?" It was the first time I'd heard him put two words together like that.

He'll wave to passerbys from our yard and say "Hi" or "Hello"

Of course his speech is still very hard to understand, but it's there and it is super cute.

His words to date are:

Mom (usually yelled and drawn out sounding Moooooom)

Dad

Tucker

Sugar

Ball

Hi

Bye

Up

No (Sounds like Ooooooo - Always drawn out with a long Minnesotan accent)

His coordination and dexterity are amazing. He's sturdy and balanced on his two feet, despite his light 27 lb. frame. He continues to love to play soccer and more recently baseball. He's watched enough games that he's got the batting swing and fielding ball stances down pat.

Seriously. My kid is cute. I cannot get enough of his awesomeness.

We have been very lucky that he's avoided many illnesses in his almost 2 short years. Even the doctor this morning said "other than the nut allergy, he's a pretty healthy kid." Unfortunately he has an ear infection right now, but he was not sick the entire winter. We got very lucky.

Speaking of the nut allergy. It has not controlled our lifestyle as much as I originally thought it might. It has been a transition, but it's been easy. We ask a lot of questions when we go out to eat and we definitely read all labels on packaged foods now. It has gone smoothly. Or it had until we sat down to eat a frozen California Pizza Kitchen Margherita pizza last night. He put a small piece of it in his mouth, spit it out and proceeded to scratch a patch of eczema on his wrist that occasionally flares up. He got very upset and kept pointing to his wrist. He showed no other sign of an allergic reaction (Thank God). It probably would have been much worse had he actually eaten it. He usually likes pizza, so I find it very interesting that he refused it last night. I've read that allergic children can sometimes refuse foods that they are allergic to. He did the same with the peanut butter toast that I served him the first time we discovered the allergy.

I'm writing this here in case anyone else Googles CPK (California Pizza Kitchen) and it's allergen information. The box says Contains: Wheat, Milk, Soy. It does not mention anything about being processed in a plant that also processes peanuts. But when Christos checked the website, there it was in bold black writing. "MANUFACTURED ON EQUIPMENT THAT PROCESSES PEANUTS."

That has been the most frustrating part of CT's diagnosis. Cross contamination and poor labeling by manufacturers. The labeling isn't consistent in this instance and it could cause serious harm.

We're taking this small reaction as a reminder to never let our guard down. Read labels. Do research. Eat less processed foods.

Tooth Count: I honestly have no idea. He won't let me check. He's been teething since February. Finally a few molars broke through in March. He is brushing his teeth these days with a fancy Dora spinbrush.

I want to end this post on a positive note, so here is a cute video. He looks so grown up and independent drinking from the water bottle all by himself while enduring Chula's (our friends dog) slobbers.He was so proud that he was able to drink from it and open and close the cap by himself. Yes, that's a chainsaw in the backyard.


Wednesday, March 2, 2011

Early 2011

You'll notice this post is date stamped March 2nd. It's when I wrote everything below. I never posted it because I was still working on it. As many of you know, our life has taken us down a completely different path since this post was written, but it is still important to me that these words be shared. I will write more about that in another post. For now I give you this.


January and February turned out to be overwhelmingly emotional months. On all levels. We anticipated hearing the news of the arrival of cousin Jenny and Dan's little girl, Ana. She arrived (on her due date) January 22nd (I believe). After a mostly textbook pregnancy, Ana's delivery caused significant health issues when she inhaled meconium. She was a very very sick little girl for many weeks. She spent 5 weeks in the NICU. We prayed hard for her health, strength and for parents patience and love. After many weeks of email updates, gorgeous pictures and video of little Ana, the last word we recieved was that she had made significant improvements and recently went home. I hope that as I write this she is snuggled up with her parents making up for all that time that she spent at the hospital. Love you guys!



Another setback has been the failing health of cousin Jennifer (my cousin Arik's wife). She recieved a donor liver from her sister a handful of years ago. And after years of rejection meds and fight, her body has decided that it no longer wants it and has started to reject it. Jennifer has spent many (too many) days and nights in the hospital since the beginning of the year treating the complications caused by her failing liver. I know this has been trying on their whole family since Kellen is so young and Jennifer hates being away from him and Arik. We continue to keep her, Arik and Kellen in our thoughts and prayers as we all wait for a new liver to become available.


Then...at the end of January I offered CT a piece of peanut butter toast. Knowing full well that it was his first real exposure to the nutty goodness. In a nutshell (ha! I'm funny), he broke out in hives, we went in for bloodwork the following morning and learned a few days later that he has a nut allergy. A trip to the allergist and two expensive EpiPen's later, we have found a new normal for our family and are moving on with life after this diagnosis. So life at our household has been one big distraction.


CT's energy and personality continue to test our limits as parents and surprises us on so many levels. This is such a fun (albiet hard) age!! He understands most everything we tell him and although he isn't speaking much he gets what we are saying and is usually a few steps ahead of us.

He started swimming lessons in late January. Which we both take him too, but Christos gets in the water with him. HE LOVES IT!!! He's not the littlest kid in his class anymore. He was very comforatable in the water. When he isn't smiling cheek-to-cheek his tongue is hanging out. On more than one occasion he'll bring me his swimsuit at home and ask to put it on. And then he'll parade around the house in it. We're celebrating the completion of this swimming session by taking him to the waterpark in Duluth for a few days in March.

CT LOVES Shrek2. It is currently the only kids movie that we own, so we've watched it at least 30 times. I swear it hypnotizes him. The kid is entranced when we turn it on. His latest antic is grabbing our hand and leading us to something he wants to share or play with. It is so cute and persistent. He's become very good at holding our hand when we're out in public too. He's also mastered using a spoon. His hand to mouth coordination is impressive.


Christos started playing soccer again with his co-ed team. CT and I have been going to his games with him. It's a great opportunity for CT to run around and kick the ball. We purposely brought a deflated ball so it wouldn't roll all over the field house, but he's much more interested in using strangers shiney new hard soccer balls. He's usually exhausted when we leave. He continues to impress all the players with his soccer skillz. In addition to swimming, it is the highlight of his weekend.


Have I mentioned that he knows how to blow his nose already? As the resident nose wiper and booger picker, this new talent is nothing short of awesome for me. I don't have many pictures to share from the past few months. Honestly, I haven't taken many. But also because CT is really not interested in having his picture taken right now. He is constantly on the move and once he sees the camera he insists on seeing the picture behind it.


Last and certainly not least, the big news to hit our household this year is that we are expecting another baby at the end of the summer. We are thrilled!! (A little nervous.) Mostly thrilled. I have been feeling pretty good. No nausea again like last time. Plenty of fatigue and poor sleep, but for the most part I really can't complain. Crazy hormornes and vivid dreams are a few other fun things I'm dealing with. We are very blessed to have gotten pregnant fairly quickly and so far it has been uneventful. Due to the status my heart, I will be delivering at Abbott again this time. To Be Continued...